Inkluzivno izobraževanje učencev s sladkorno boleznijo tipa 1 v Španiji: realnost ali utopija
Povzetek
Prisotnost, sodelovanje in učenje pri otrocih s sladkorno boleznijo tipa 1 pri pouku v Španiji niso zagotovljeni zaradi ovir različnega izvora. Namen te raziskave je razumeti inkluzivno vizijo sladkorne bolezni v šoli skozi glas ljudi, vključenih v šolski proces, in analizirati izobraževalno realnost učencev s sladkorno boleznijo tipa 1, pri čemer je treba preučiti ovire pri inkluziji pa tudi možnosti za njeno doseganje. Uporabljena je bila kvalitativna in fenomenološka raziskava, pri čemer so bili podatki pridobljeni s poglobljenimi intervjuji s starši otrok s sladkorno boleznijo tipa 1 in z njihovimi učitelji, vsi s prebivališčem v pokrajini Segovia v avtonomni skupnosti Kastilja in León (Španija). Pridobljeni izsledki nam omogočajo vizualizacijo nekaterih izkušenj družin in učiteljev glede na začetek bolezni (diagnozo) ter olajševalne elemente in ovire, ki jih zaznavajo v šoli. Kompleksnost bolezni pogosto ovira vključevanje obolelih v šolah. Ovire vključujejo pomanjkanje usposabljanja za sladkorne bolnike, pomanjkanje sredstev in podpore ter neustrezno usklajevanje med upravnimi skupinami. Po drugi strani pa so poudarjeni: pomen šolske medicinske sestre, sodelovanje med družinami, strokovnjaki, zdravstvenimi delavci in učitelji ter vključenost učiteljev v skrb za učence. Dostop do inkluzivnega izobraževanja za učence s sladkorno boleznijo tipa 1 je odvisen od odnosa in vključenosti učiteljev.
Prenosi
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